Dr. Frankel's Journal

CANNABIDIOL (CBD) AND CEREBRAL PALSY

I have now seen approximately seven patients with Cerebral Palsy. These patients, as we are well aware of, are patients subjected to birth trauma.

They can present in many different ways, but in general, their cerebral function is entirely normal but they are debilitated to varying degrees depending upon which and how many spinal nerves were damaged during the birth.

So, these patients have “upper neuronal tract” injuries and present with decreased movement and significant spasticity.

One would think that treating them as we would treat them with CBD/THC would be similar to treating multiple sclerosis and it’s spasticity. However, I have found that a number of different doses and combinations of CBD/THC are useful in these patients.

The outcome results, I believe, are threefold:

1. Reduction in spasticity. This improves over time, sometimes with primarily CBD and sometimes with a balance of the two.
2. Increased mobility, which is probably in part related to decreased spasticity and sometimes due to direct muscle relaxation
3. Marked decrease in their general anxiety level and “performance anxiety”. As I have stated in other blogs, helping young children or adults with performance often can be in large part
accomplished by decreasing their anxiety with CBD.

Anyone have other experiences with CP??

54 Comments. Leave new

NICOLE GANDY
August 2, 2014 8:15 am

MY DAUGHTER HAS CEREBRAL PALSY AND LENXOX GASTOUT SYNDROME WITH 5 SEIZURE MEDS THAT ARE NOT EFFECTIVE. LOOKING FOR SUGGESTIONS OF TREATMENT/DOSAGE. SHE IS A SPASTIC QUADRAPLEGIC.

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Allan Frankel, MD
August 4, 2014 9:56 am

Please call my office at 310-393-0640 to setup a phone consultation. I have treated a number of patients with CP, spasticity and seizures.

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Allan Frankel, MD
August 6, 2014 8:50 am

It is very likely CBD would help with her spasticity and comfort.

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I have spastic dipledga and have tried CBD for spasticity however I haven’t found the best combo for pain & spasticity yet…The higher the CBD the better results but wonder if the ratio 1:1 cbd thc would work..

Traditional medicine makes me a zombie and I cannot function CBD or CBD THC is really my only hope and feeling better controlling my pain and hopefully reducing my spasticity if not eliminating it..

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Allan Frankel, MD
May 11, 2017 3:15 am

I would make sure you are using CBD that is whole plant cannabis and not hemp.
You can also benefit from THC-A, or THC-ACID which is the precursor to THC in the plant. Heating causes the THC-A to convert to THC, but THC-A has a lot of benefits for a number of conditions and if often very helpful in treating spasticity

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My name is Tracy Evans..I’ve smoked marijuana and i have cerebral palsy(spastic/athetoid)trying to find a dr somewhere near or in bloomington illinois that would help me get on mwdical marijuana..

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Allan Frankel, MD
November 1, 2014 10:30 am

It is possible that some information we can share would be of value to you. We have used CBD for many patients with spasticity and CP in particular. Perhaps setting up a phone consult would be of value?

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I live in Illinois. Can you still help me?

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Allan Frankel, MD
December 28, 2015 7:23 pm

We work with a lot of patients out of state. I am able to do a one hour educational phone call and help you figure out what to do next.There is always a solution

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Whitney Dawson
January 24, 2015 11:58 am

What would the MG dose of CBD be for a 4 year old with cerebral palsy

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Allan Frankel, MD
February 10, 2015 10:33 am

There is no “single” correct dose. It depends upon a number of issues. This is something to be discussed with a physician.

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Whitney I also have a 4 year old with chronic cp would you mind contacting me I’m interested in what you’ve been able to achieve with this I’m trying to find alternative treatment plans for my daughter as well rosietwins@gmail.com

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Anthony Eberhardt
July 27, 2015 11:32 pm

12 year old with CP and resulting dystonia. Rehab doctor wants to implant a baclofen pump. I want to try CBD first what would the dose be for a 75# 12 year old, or a good starting dose to titrate from?

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Allan Frankel, MD
July 28, 2015 11:04 pm

We have had a reasonably good response to spasticity in CP patients as well as the spasticity of parkinson’s disease and various forms of Dystonia

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I have had two Baclofen pumps and personally regret them. They did help but also had lots of side-effects as well as having to get refills on a very specific schedule (no vacations or being ill if I was due for a refill) as well as lots of PT at first until dosage was correct. I was an adult and found it consumed too much of my life for the benefits I received. Last one malfunctioned and I decided to not have another. I am mobile but do use a service dog. I am looking into CBD as a possible help. Of course not knowing how severe your child is I can’t say what would be best but I would suggest trying a non-surgical approach first.
GOOD LUCK!!

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Allan Frankel, MD
August 12, 2015 2:30 pm

I have treated a number of patients with CP as well as other causes of spasticity, including the spasticity of Parkinson’s disease, with Wide ratio CBD:THC cannabis products.

It is well worth a try and fairly low doses are often required, so start slow.

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I would love contact. I have a 13 year old son with spasticity related to CP, that is on the list for a study at OHSU. There is such an unbelievable amount of kids that qualify that it is unlikely he will be called for the study. We do not want to wait. Our neurologist is looking into how to get a med card and do ourselves. Any advice would be greatly appreciated!!!!

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Allan Frankel, MD
September 16, 2015 5:27 pm

If you live in California, perhaps an in person consultation makes sense. If coming in is an issue, we can have a phone consultation. I have treated a number of these kids with overall very good results

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Can you contact me? I’m in oregon too and have questions

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Allan Frankel, MD
December 27, 2016 11:28 pm

If you have a number of questions please call the office and setup a time for an educational consult.

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Dear Debbie,
Did it help your son? Please e-mail me josephg@Carolina.rr.com please

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I am writing from India. I have a niece with cerebral palsy with dystonia
How can I consult you ? Can we set up a Skype meet ?

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Allan Frankel, MD
January 3, 2016 11:53 pm

Please feel free to call my office, 310-393-0640, and setup a phone or skype call.

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Terrie Lumsden
April 19, 2016 8:21 pm

My daughter is 32 years old and just went thru a Baclofen trail for the pump. I am looking for something else that might not be as invasive. Her spasticity has gotten worse as she is getting older. Her legs are the main issue and she has a scissors walk. Would this help her?

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Allan Frankel, MD
April 20, 2016 4:00 pm

We generally have good results with spasticity using CBD and/or THC-Acid. I would consider setting up a phone or in person consultation.

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Allan Frankel, MD
April 23, 2016 4:53 pm

Both CBD and THC-A help with spasticity. For details consider calling my office?

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Monica Johnson
April 20, 2016 6:18 pm

My nephew is 2. Dx= Dyskenetic CP, we live in MD. Would the use of CBD be beneficial to him in anyway, shape or form. Wondering if it is even with the mention to his mother, grandparents and Dr.

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Allan Frankel, MD
April 23, 2016 4:54 pm

Isn’t Maryland a Med Mar State? I think bringing it up is very fair game and also VERY reasonable to try. In fact, both CBD and THC-Acid (non activated THC) are both potential helpful agents

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Does CBD work for older patients? My husband is 44 years old and CP. He has been getting worse over the past few years (ie. Pain and movement).

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Allan Frankel, MD
August 8, 2016 4:21 pm

Absolutely. I have not found CBD to be age dependent with nearly all with pain and spasticity. It is not just CBD, a little THC and perhaps a modest addition of THC-Acid is also often a big help.

I would suggest a phone consultation if you are remote to LA or just setup an in person consultation.

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Hi , I have spastic cp on left side, I use to be more active, I’m 51 now and just tired of things and worries. and pain, I used to go to a neurologist he would give me Botox shots, but it’s moved his office and have different insurance I don’t think my general doctor even understands spastic cp. sent me too I spine specialist that just changed one of my medicines to a stronger one., Just knocks me out I can’t function. I’ll call you if you think I’m good enough.

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Allan Frankel, MD
August 31, 2016 2:51 pm

Yup. 310-393-0640

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I’m a 51 yr. old female who has spastic cp on left side, with age also Arthisis and bursitis . I had a neurologist once that gave botox shots but can no longer see him. Long story short, do you think you could help me?

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Allan Frankel, MD
August 31, 2016 2:50 pm

I have seen a number of CP patients. Both CBD and THC-A are helpful. I think I can help you

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I have a 22 year old daughter with CP who has been receiveing shots of botox in her legs and hips for 8 years. They help for about 6 weeks but insurance only allows injections every 12 weeks. She has asked me to find edibles for her as possible relief for the spasticity and pain. I don’t know where to begin. We are in Louisiana. Any advice?

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Allan Frankel, MD
September 26, 2016 6:30 pm

Both CBD and THC-A can be quite helpful with the spasticity. Perhaps an educational phone consult with me would be a good start?

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My son is 10months old and has a mild case of co was wondering is he too young to try cbc his muscles are very right he has a hard time picking up items he isn’t sitting,crawling or even able to feed himself

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Allan Frankel, MD
January 11, 2017 12:03 am

Both CBD and THC-Acid are clinical treatment options. Please call my office at 310-393-0640

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My son is now almost 8 months with the same issues. I’d love to connect with you

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Hello just had a couple questions …. my 25 year old brother has cp and has a severe case of autism… we have tried all types of medications but nothing seems to ease his pain and discomfort. Do you think medical marijuana is something that would help or do you think it isn’t a good idea?

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Allan Frankel, MD
January 12, 2017 3:13 pm

I think it is a great idea. I treat a lot of spectrum patients as well as a number of CP patients. There is no down side and often it helps with spasticity, mood and even cognitive function.

In addition, it will not take very long to know if it works. I imagine we would know within a month. We are using CBD, THC-Acid and some THC.

Consider calling my office for a consult? We can review dosing and where medicines are available. We also follow all of our patients with patient messaging at no charge. So, after the first in person or phone consult, you will have a fair amount of follow up messages as we tune up the dosing.

Consider calling my office at 310 393 0640

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I would very much like to set up a phone interview. My son is diagnosed with spastic CP due to prematurity. I’m interested in cbd for therapy.

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Allan Frankel, MD
February 17, 2017 6:34 am

Great. Just call my office at 310-393-0640. Look forward to speaking with you. We generally get a number of benefits with our CP patients

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Carissii Bank's
March 18, 2017 1:51 pm

I have a son 24 with cerebral palsy, autism, he does a lot of rocking,spinning in circles while walking, he bites his hand. He’s on several medication but they don’t really help. Can this treatment help him.

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Allan Frankel, MD
March 18, 2017 9:39 pm

We find that both CBD, THC and often THC-A help these kids. There is usually a lot of spasticity which thc-acid is very good for. We often use extra THC for acting out.Consider calling us for a phone consultation. 310-393-0640

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We have a 7 year old daughter with diatonic cp we need help we are in central California wanna try cod
Shaffer1982@yahoo.com
6614476812

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Allan Frankel, MD
March 27, 2017 2:43 pm

I assume you mean “dystonic” CP? If so, in fact a lot of CP patients have moderate to severe dystonia or stiffness with spasms. I have seen a number of patients similar to this. I would say we have had good results with about half of the patients.

Might be worth a drive down to LA for a consult?

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Anita Apodaca
April 10, 2017 10:39 pm

My son is 10 with spastic dysplasia cp. He had SDR done 2 yrs ago. He is still a little stiff. We would like to to try cbd oil with him. What do you think? When anxious he bites his hands he’s I meds right now for adhd.

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Allan Frankel, MD
April 13, 2017 7:01 pm

Both CBD and THC-Acid might be a big help. I would suggest seeing me or calling for a consultation before buying products. There are some great products out there, but most of them are far from great, at least in my opinion

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My daughter is 10 with spastic quad. CP. We live in London and have no where to turn when it comes to sourcing CBD/THC-A. It is not yet prescribed here, nor can I find a paed.consultant who will consider guiding us on dosage. There are various sites to buy it but I’d rather have the support from a well informed medical professional. Do you have any colleagues with connections in the U.K. Who could help me? Also my daughter has kyphscoliosis and is due an operation for a permanent spine rod, which I’m seriously worried about. The pain during rehabilitation as well as the anaesthetic being the biggest worry. She currently has 26 doses of medications daily, including baclofen, diazepam, nitrazapam, trihexyphenidyl for her spasms. She is having regular chest infections and I am now desperate to get her off some of the above medications, very slowly of course. Diazepam is especially a cause for concern with regards to her respiratory vulnerability. Any help, advice or links would be greatly appreciated. Many thanks

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Allan Frankel, MD
April 21, 2017 1:20 pm

This is a very complicated situation. I MIGHT be able to help out with some issues. I believe it would be worthwhile to setup an hour phone or skype consultation.

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That would be helpful, how do I arrange a telephone consultation and can you please tell me the how much you charge for this.
Kind regards
Hayley

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My daughter is 2 and she is spastic quadriplegic, microcephaly with episodes of seizures once in few months, and g tube fed. Her last seizure was in December. So her neurologist increased the doses of Keppra and Baclofen (due to her weight gain), and addition to those she’s taking Phenobarbital and Valproic acid (for seizure), Carnitor and Prevacid-for reflux. About a month ago, I mentioned to her neurologist that ever since she had her last seizure, with the increased doses of Baclofen, she seems to have less spasticity on her arms and legs; but it might be too much because her legs are not as strong as before in regards of standing up. So her Doctor told me to decrease a little bit of Baclofen and see how she’s doing. Also, he brought up about doing Botox for her. I’m grateful with this current Doctor for providing information compared to her previous one; but I’ve been reading a lot about Cannabis oil in one of Facebook group for CP family. I just want to dig more about Cannabis oil and see if this will work for my daughter, and how to get it if I’m interested. I live in California. Thanks for your time 😊

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Allan Frankel, MD
April 30, 2017 4:25 pm

Would it be possible for you to come in with her? If overly difficult, consider a phone consult. We would help you decide what doses to give, how to administer it and offer a lot of follow up messaging for no charge. I agree that it is well worth a try

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