Dr. Frankel's Journal

A THANKFUL MYASTHENIA GRAVIS PATIENT

We recently received the following note from a patient suffering from Myasthenia Gravis who has seen improvement of her symptoms after beginning a regimen of CBD and THC-A:

In February of 2016 my life was gravely altered when all of the pieces of the puzzle came together with a diagnosis of MuSK Myasthenia. The droopy eyelids and face, slurred speech with an inability to pucker my mouth, double vision that at times was debilitating and eating baby food or liquids due to inability to swallow.

That is where I had descended to by March 2017 but I was determined I was not going to get into the drugs that were recommended and of course all of the side effects that come with those drugs.

In doing some online research to find an alternative treatment I luckily came across Dr. Allan Frankel and his cannabis practice. Dr. Frankel gave me a formula to take in spray form and within two days I had absolutely no more arthritis or joint pain. This had nothing to do with the Myasthenia but what a very pleasant surprise!!! Within about three days I could pucker my mouth and swish mouthwash in my mouth again. I was also able to run my tongue over my teeth both top and bottom and fold my tongue again. By the seventh day of taking the oils the double vision was gone and the swallowing was greatly improved. I stand in front of the mirror every morning and go through my litany of what I can and cannot do because of the symptoms. Now I am able to eat anything I like and my symptoms are GREATLY suppressed. I am full of hope.

I am so very grateful to Dr. Frankel for altering my life in a way I never thought possible. Dr. Frankel has a wonderful gift and we are all so very lucky that he is willing to share and put so much of his precious time into our well being. I have to also acknowledge the office staff. They are very helpful, polite and full of patience.

Thank you to all. Susan

13 Comments. Leave new

Peter Spiegel
May 25, 2017 4:45 am

Hello Dr. Frankel I watched one of your videos describing your series of patients with m g it’s very intriguing. Could you elaborate on what is known about the mechanism. How is acetylcholine increased. What happens at the neuromuscular junction is pretty well characterized. What exactly is going on here with cannabis? And how do we know? As you know I am a Neuro ophthalmologist and have treated many myasthenia patients over my career.

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Allan Frankel, MD
May 25, 2017 3:55 pm

This is a lot for a blog note, but perhaps we can communicate by phone afterwards at a convenient time?

I THINK that there are a couple of mechanisms. I believe that there is an immune balancing with the cannibinoids. With some patients we have seen drops in their acetylcholinesterase antibody. I believe there are also some mitochondrial effects going on. We have seen similar responses with THC-A with micro neuropathy patients. It seems that diseases where mitochondrial ATP (I think??) may increase the muscle strength.

I am the first to say I am not an expert in MG. I would be very interested to know your thoughts? Thank you, Allan

Reply
Alfonso Solano
June 2, 2017 5:51 am

Hello Dr. Franken,

How many other MG patients have you succesfuly treated? Have any gone into remission after you treating them?

Thank You!

Reply
Allan Frankel, MD
June 2, 2017 2:10 pm

Not sure what you mean by “remission”. The patients seem to mostly do very well, but they do need to stay on the cannabis

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Alfonso Solano
June 2, 2017 7:41 pm

Thank you Dr.
That answers my question. So they stay on the cannabis but off the medications, i.e. mestinon, cellcept etc…?
That’s awesome!

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Robert Castro
June 5, 2017 3:24 pm

I have MG and have told my Neurologist about your success with MG patients. He will not prescribe Marijuana because of the Federal law but says to try it if I want. I have had limited success with CBD oil. You seem to feel that THC is necessary. Why so?

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Allan Frankel, MD
June 8, 2017 5:47 pm

The two most important cannabinoids are CBD and THC-Acid. In addition, once patients are on the CBD and thc-acid, often adding some THC helps them.

Reply

Further to your article on dizziness and CBD, I was diagnosed with BPPV (benign paroxysmal positional vertigo) for which I was prescribed the pharmaceutical drug, Stemetil. On a long-term basis I was not happy with taking this with a number of known side effects and it only relieved my symptoms temporarily and then they returned. I decided to try CBD oil as I was waking up with dizziness nearly every morning. I am happy to report that I no longer suffer from CBD. I take a rice grain sublingually every second night.

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Allan Frankel, MD
June 12, 2017 2:26 pm

Great! Thanks for sharing with all of us

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Stacy Costabile
June 12, 2017 4:47 am

Hi, are you able to treat someone from out of state?

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Allan Frankel, MD
June 12, 2017 2:24 pm

I do a lot of educational phone consults. We can generally find a reasonable oil program and help you find it depending upon where you live.

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Robin Fernandez
June 23, 2017 7:12 pm

I was diagnosed with a meningioma in the CPA region- compressing the pons of my brain stem while affecting six cranial nerves at 3cm with 2cm of a dural tail extending into my IAC. Surgery has too many risks, at this time. I have been using CBD oil nightly and am curious about treatments for vertigo and nausea. I currently take klonopin and phenegran… I would like to arrange an appt with you but I am in Az.

Reply
Allan Frankel, MD
June 27, 2017 1:27 pm

You might consider setting up a phone consult. We can discuss options and meds and usually can help you with finding the medicine. Arizona is getting better with more meds available

Reply

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